24/364 - Keeping the light on for rare
Keeping the light on for rare

“She will not give up. She will take each day, each hour as it comes.”

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In the Light Docuseries

In the Light is a documentary short film series dedicated to revealing an unvarnished, human portrait of rare disease. Each episode tells a personal story that’s rarely seen: the rhythm of ordinary 24-hour days, and the extraordinary love and strength that carry people forward.

In the Light is a 24/364 film production—brought to life by CG Life—to make rare a bigger part of the everyday health conversation.

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Dee
“The fact that she’s here and still kicking, I attribute to two things: her stubbornness and my stubbornness.”
Dan, husband of Dee, who lives with Niemann Pick Disease
Despite years of health challenges and a long path to diagnosis, Dee remains determined in her fight and is in it to win it.
Follow 24/364 for more inspiring stories like hers.
24/364 Rare Disease Film Festival

Coming to San Diego March 2027

A one-of-a-kind celebration inviting storytellers to bring rare disease from the margins into full view through films that are impossible to forget.

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24/364 brings year-round visibility to the lived experience of rare disease.

Building on the awareness Rare Disease Day creates annually, 24/364 represents the reality that follows — the other 364 days of resilience, uncertainty, courage, and connection. Through storytelling, inspiration, and experiences, 24/364 turns isolation into belonging and visibility into shared strength. This isn’t a single event, campaign, or moment. It’s our way of elevating rare voices, showing up with powerful presence, and showing the world what living with a rare disease really means 24 hours at a time.

24/364 is a symbol that declares people living with rare diseases and those who stand with them won’t disappear when the spotlight does.

300+ Million

People worldwide live with rare disease

Together, let’s drive the conversation to the forefront

24/364 - Keeping the light on for rare

Get updates about our films, events, drops, and more.

You’ll be the first to know about 24/364 film festival news, plus content and opportunities to stand with the rare disease community on the 364 days beyond Rare Disease Day.